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AL Estate Planning & Elder Law Blog

Wednesday, October 16, 2024

The Dangers of the Wrong Estate Planning for a Loved One with Special Needs Like Down Syndrome

When planning for the future of a loved one with Down Syndrome or other special needs, did you know having the right Alabama estate plan is crucial?  Mistakes in estate planning can have unintended consequences, potentially disqualifying your loved one from essential government benefits or leaving them vulnerable to financial hardship. The stakes are high, and it is important to understand the dangers of using the wrong approach when planning for the long-term care and financial security of a family member with special needs.

One of the most significant dangers of improper Alabama estate planning for a loved one with special needs is the risk of disqualifying them from vital government programs like Medicaid and Supplemental Security Income (SSI). These programs have strict asset and income limits, and leaving assets directly to your loved one in a last will and testament or trust agreement could push them over those limits. Further, without careful planning, a well-meaning inheritance could cause your loved one to lose access to the public benefits that provide critical healthcare and support services. It may then take time and legal intervention to reverse these consequences, leaving your loved one without the support they need.

As an experienced Alabama estate planning firm, we see many families make the mistake of leaving assets directly to their loved one with Down Syndrome, either through a traditional trust or as an outright inheritance. Unfortunately, this can lead to a financial disaster. A traditional trust does not provide the same protections as a special needs trust, which is specifically designed to ensure that your loved one continues to qualify for public assistance programs while still benefiting from the assets placed in trust.

A special needs trust, by contrast, holds assets for your loved one’s benefit without disqualifying them from benefits like Medicaid or SSI. It allows a trustee to manage the assets and use them to cover expenses that improve your loved one’s quality of life. These are expenses that are not covered by government programs, such as educational opportunities, recreational activities, or personal care. Your experienced Alabama estate planning attorney will be able to guide you down the path you need. We know that without this trust in place, your loved one’s inheritance could quickly be spent down to meet asset eligibility requirements for public benefits, defeating the purpose of your estate plan.

Another common mistake in estate planning for loved ones with special needs in Alabama is choosing the wrong trustee. The trustee is responsible for managing the assets in the special needs trust and making distributions on behalf of your loved one. Selecting someone who is inexperienced, unfamiliar with special needs planning, or not fully committed to the long-term responsibilities can lead to poor management of the trust.

In some cases, a well-intentioned family member may not understand the legal requirements of managing a special needs trust and could inadvertently make distributions that disqualify your loved one from benefits. To avoid this risk, discuss with your attorney the consideration of appointing a professional trustee or corporate trustee with experience in managing special needs trusts.

As we use National Down Syndrome Awareness Month as a reminder, for individuals with Down Syndrome, Alabama estate planning must go beyond financial considerations. It is equally important to have a long-term care plan in place that outlines how your loved one’s personal and medical care will be managed as they age. Unfortunately, failing to establish a detailed care plan could leave your loved one vulnerable, with no clear direction for their future care needs.

Remember, a static Alabama estate plan is another danger when it comes to planning for a loved one with special needs. Families often set up a plan and assume it will work indefinitely. However, laws surrounding Medicaid, SSI, and special needs trusts frequently change, and your loved one’s circumstances may evolve as well. An outdated estate plan may no longer offer the protections you intended, and failure to review and update the plan can result in costly mistakes. Regular reviews with an experienced Alabama estate planning and elder law attorney can help ensure that your plan remains compliant with current laws and is tailored to meet your loved one’s changing needs.

We know this article raises more questions than it answers.  The dangers of improper estate planning for a loved one with Down Syndrome or other special needs can be avoided with careful planning and the guidance of an experienced Alabama estate planning and elder law attorney. At the end of the day, legal planning is not just for you. Instead, it is for the ones you love most. If we can answer any questions for you on putting this estate planning in place, please do not hesitate to let us know. For more information, please reach out to our office and schedule a time to meet.


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